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Seattle, WA “Raindrops Keep Falling”
Richard and Muriel Saunders
(9/02) Raincoats are regular attire for Richard and Muriel Saunders
when they travel to Seattle. Seattle is a research site for a research
project funded by the National Institutes of Health on microswitch
use in persons with profound multiple impairments. The research
is conducted at Fircrest, a residential facility that is home to
approximately 200 individuals with mental retardation. The Saunders
work with staff and residents in the Skilled Nursing Facility (SNF),
although parts of the facility also have ICF-MR funding. The individuals
served in the SNF require 24-hour nursing care. All residents have
multiple impairments: 74% have severe orthopedic impairments including
contractures, scoliosis, quadriplegia, and so forth; 72% are blind
or severely visually impaired; 23% are deaf or hearing impaired;
95% have a diagnosed seizure disorder; and 46% are fed by tube.
None of the participants have the ability to reach and grasp objects.
None have the ability to communicate either by spoken word, communication
devices, gestures, or in many cases, by facial expression.
The Saunders are investigating ways to enable these individuals
to control their personal environments and to request attention
through the use of a microswitch. A microswitch may be a pressure-sensitive
disk, joy-stick, mercury filled tube, or motion detector. When
the switch is closed, moved, or otherwise enabled, it causes electricity
to flow to an electrical device. Leisure items that can be controlled
by Fircrest residents include audio tape players, fans, vibrators,
mechanical toys, and computer-delivered entertainment. The signal
devices are usually those that buzz or “ding dong” when
the switch is closed.
Microswitches are prevalent in schools serving children with multiple
impairments, so why did the Saunders choose Seattle as a research
site? SNF staff typically are not aggressive about providing training
in areas of communication and learning. Fircrest staff began making
microswitches around 1985 and before switches were commercially
available. Staff also designed and produced a databox that automatically
measured the number and length of switch closures. Although staff
no longer make switches, they are able to repair them. They also
have refined their databox. Therefore, the site offered a knowledgeable
and eager staff who were interested in continuing their ongoing
switch program. Dr. Leslie Olswang, Associate Director of the Speech
and Hearing Department, also showed an interest in the research
and was willing to provide graduate students to act as research
assistants.
The project is currently in its third year of funding. Three Masters-level
students and one Ph.D.-level student have worked on the project.
In addition, 5 speech-language pathologists, 1 psychologist, 3
recreation therapists, and 3 program coordinators from Fircrest
have assisted with the project. Muriel and Dick communicate regularly
by phone and email as well as access to a common website.
Visits to Seattle occur every 6-8 weeks, and yes, it always rains
except in the middle of summer. The temperature is typically around
55° all year. As some of you may know, the Saunders have acted
as consultants to the Fircrest program for a number of years. Seattle
has had two major snowstorms in the last decade and both occurred
during their visits. Unfortunately, Fircrest staff think of the
Saunders as harbingers of snow to their rainy city.
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